The couple living with dementia in the Community: Accomplishing life together Through their Efforts toward Mutuality

dc.contributor.authorTallman, Barbara
dc.contributor.examiningcommitteeMartin, Donna (Nursing) Roger, Kerstin (Community Health Sciences) Funk, Laura (Sociology) Baumbusch, Jennifer (University of British Columbia)en_US
dc.contributor.supervisorGuse, Lorna (Applied Health Sciences)en_US
dc.date.accessioned2019-09-17T18:01:14Z
dc.date.available2019-09-17T18:01:14Z
dc.date.issued2019-08-30en_US
dc.date.submitted2019-09-06T23:20:43Zen
dc.degree.disciplineApplied Health Sciencesen_US
dc.degree.levelDoctor of Philosophy (Ph.D.)en_US
dc.description.abstractThe relationship of the couple when one spouse lives with dementia is increasingly identified as significant to their experience of dementia. My study explores the couples’ relationship by examining their efforts toward mutuality. Two research questions were developed to explore the couples’ efforts toward mutuality: 1. How did the intimate couples respond to each other when they were talking about their everyday activity/ relational story and when they engaged in routine/novel activities; 2. How did their responses shape the mutuality of the intimate couple? Focused ethnographic methods were used to collect the data. Three to five field visits were conducted with eight different couples. Data was collected using joint, individual, semi-structured and guided conversation type interviews and participant-observation. Symbolic Interactionism and the narrative approach informed the thematic analyses applied to the data. Answering the first question identified how the social self of the PLWD and their spouse were making sense of their current situation living with dementia. Two types of responses were identified: the response of the familiar self and the response of the unfamiliar self. The response of the familiar self expressed the spouses moving toward mutuality while the response of the unfamiliar self expressed the spouses’ difficulty with their mutuality. The second question was answered by deciphering the patterns of responses in the stories being told by the couple. These responses formed three different patterns of interactions. These different styles of interaction are enhancing, maintaining and disrupting. The different responses and styles of interactions are the analytical framework that describes the mutuality being expressed in the interaction. The findings of this study identify that the couple makes meaningful efforts toward mutuality to accomplish their life together. It is suggested that strategies promoting the well-being of the couple be based on principles of relational practice.en_US
dc.description.noteOctober 2019en_US
dc.identifier.urihttp://hdl.handle.net/1993/34289
dc.language.isoengen_US
dc.rightsopen accessen_US
dc.subjectDementiaen_US
dc.subjectIntimate coupleen_US
dc.subjectJoint interviewen_US
dc.subjectFocused ethnographyen_US
dc.subjectThematic Analysisen_US
dc.subjectEveryday activityen_US
dc.subjectRelational storyen_US
dc.titleThe couple living with dementia in the Community: Accomplishing life together Through their Efforts toward Mutualityen_US
dc.typedoctoral thesisen_US
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