The child and family living with complex health needs in the community: lived experiences and patterns of coping and relationship

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dc.contributor.supervisor Bartell,Riva (Educational Administration,Foundations & Psychology) en_US
dc.contributor.author Duff, Miriam Anne
dc.date.accessioned 2012-09-05T20:29:22Z
dc.date.available 2012-09-05T20:29:22Z
dc.date.issued 2012-09-05
dc.identifier.uri http://hdl.handle.net/1993/8605
dc.description.abstract This study explored the perspectives of children whose complex health needs included respiratory technology dependence, and that of their parents, regarding community life and helpful patterns of coping and relationship. In-depth interviews were conducted with 7 children (3-18 yrs. old) and 8 parents. Survey data collected from 31 parents contributed to a convergent mixed methods design. Findings showed that children viewed themselves as normal, but experienced "a constricted life". Parents' active engagement in their child's life, as system navigators and advocates, was necessary to ensure their child's wellbeing. Key relational components included "authentic engaged presence", caring, competence, communication and collaboration. Effective coping patterns included reliable social support and both emotion-focused and problem-focused strategies. Contextual factors significantly affecting parental coping and relationships included family structure and child’s dependence on invasive respiratory technology (tracheostomy). Respite reported inadequate. Findings have practice and policy implications for health, respite and education systems, professionals and parents. en_US
dc.rights info:eu-repo/semantics/openAccess
dc.subject children en_US
dc.subject families en_US
dc.subject complex care en_US
dc.subject respiratory technology en_US
dc.subject disability en_US
dc.subject Canada en_US
dc.subject coping en_US
dc.subject parent en_US
dc.subject relationship en_US
dc.subject tracheostomy en_US
dc.subject mechanical ventilation en_US
dc.subject social support en_US
dc.subject respite care en_US
dc.subject community en_US
dc.subject authentic engaged presence en_US
dc.subject self-compassion en_US
dc.subject mixed methods en_US
dc.subject school en_US
dc.subject health care en_US
dc.subject counselling en_US
dc.subject strengths-based en_US
dc.title The child and family living with complex health needs in the community: lived experiences and patterns of coping and relationship en_US
dc.type info:eu-repo/semantics/masterThesis
dc.type master thesis en_US
dc.degree.discipline Educational Administration, Foundations and Psychology en_US
dc.contributor.examiningcommittee Lutfiyya, Zana (Educational Administration, Foundations & Psychology) Giles, Brenda Louise (Physiology) en_US
dc.degree.level Master of Education (M.Ed.) en_US
dc.description.note October 2012 en_US

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