The child and family living with complex health needs in the community: lived experiences and patterns of coping and relationship

Simple item page
dc.contributor.authorDuff, Miriam Anne
dc.contributor.examiningcommitteeLutfiyya, Zana (Educational Administration, Foundations & Psychology) Giles, Brenda Louise (Physiology)en_US
dc.contributor.supervisorBartell,Riva (Educational Administration,Foundations & Psychology)en_US
dc.date.accessioned2012-09-05T20:29:22Z
dc.date.available2012-09-05T20:29:22Z
dc.date.issued2012-09-05
dc.degree.disciplineEducational Administration, Foundations and Psychologyen_US
dc.degree.levelMaster of Education (M.Ed.)en_US
dc.description.abstractThis study explored the perspectives of children whose complex health needs included respiratory technology dependence, and that of their parents, regarding community life and helpful patterns of coping and relationship. In-depth interviews were conducted with 7 children (3-18 yrs. old) and 8 parents. Survey data collected from 31 parents contributed to a convergent mixed methods design. Findings showed that children viewed themselves as normal, but experienced "a constricted life". Parents' active engagement in their child's life, as system navigators and advocates, was necessary to ensure their child's wellbeing. Key relational components included "authentic engaged presence", caring, competence, communication and collaboration. Effective coping patterns included reliable social support and both emotion-focused and problem-focused strategies. Contextual factors significantly affecting parental coping and relationships included family structure and child’s dependence on invasive respiratory technology (tracheostomy). Respite reported inadequate. Findings have practice and policy implications for health, respite and education systems, professionals and parents.en_US
dc.description.noteOctober 2012en_US
dc.identifier.urihttp://hdl.handle.net/1993/8605
dc.language.isoengen_US
dc.rightsopen accessen_US
dc.subjectchildrenen_US
dc.subjectfamiliesen_US
dc.subjectcomplex careen_US
dc.subjectrespiratory technologyen_US
dc.subjectdisabilityen_US
dc.subjectCanadaen_US
dc.subjectcopingen_US
dc.subjectparenten_US
dc.subjectrelationshipen_US
dc.subjecttracheostomyen_US
dc.subjectmechanical ventilationen_US
dc.subjectsocial supporten_US
dc.subjectrespite careen_US
dc.subjectcommunityen_US
dc.subjectauthentic engaged presenceen_US
dc.subjectself-compassionen_US
dc.subjectmixed methodsen_US
dc.subjectschoolen_US
dc.subjecthealth careen_US
dc.subjectcounsellingen_US
dc.subjectstrengths-baseden_US
dc.titleThe child and family living with complex health needs in the community: lived experiences and patterns of coping and relationshipen_US
dc.typemaster thesisen_US
Files
Original bundle
Now showing 1 - 1 of 1
Thumbnail Image
Name:
duff_miriam-r.pdf
Size:
9.04 MB
Format:
Adobe Portable Document Format
Description:
Download
License bundle
Now showing 1 - 1 of 1
Thumbnail Image
Name:
license.txt
Size:
2.25 KB
Format:
Item-specific license agreed to upon submission
Description:
Download
Collections
FGS - Electronic Theses and Practica