Coping with Inflammatory Bowel Disease: Engaging With Information to Inform Health- Related Decision-Making in Daily Life

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dc.contributor.authorRestall, Gayle
dc.contributor.authorSimms, Alexandria
dc.contributor.authorWalker, John
dc.contributor.authorHaviva, Clove
dc.contributor.authorGraff, Lesley
dc.contributor.authorSexton, Kathryn
dc.contributor.authorMiller, Norine
dc.contributor.authorTargownik, Laura
dc.contributor.authorBernstein, Charles
dc.date.accessioned2019-05-13T21:14:18Z
dc.date.available2019-05-13T21:14:18Z
dc.date.issued2017-05
dc.date.submitted2019-05-10T20:22:07Zen
dc.description.abstractAbstract BACKGROUND: People with inflammatory bowel disease (IBD) require disease and lifestyle information to make health-related decisions in their daily lives. Derived from a larger qualitative study of the lived experiences of people with IBD, we report on findings that explored how people with IBD engage with health-related information in their daily lives. METHODS: Participants were recruited primarily from the Manitoba IBD Cohort Study. We used purposive sampling to select people with a breadth of characteristics and experiences. Individual interviews were audio-recorded and transcribed verbatim. Data were analyzed using inductive qualitative methods consistent with a phenomenological approach. RESULTS: Forty-five people with IBD participated; 51% were women. Findings highlighted the temporal and contextual influences on engagement with health-related information. Temporal influences were described as the changing need for health-related information over time. Participants identified 6 contextual factors influencing engagement with information to make health decisions: (1) emotional and attitudinal responses, (2) perceived benefits and risks, (3) trust in the source of the information, (4) knowledge and skills to access and use information, (5) availability of evidence to support decisions, and (6) social and economic environments. CONCLUSIONS: Findings illustrate the changing needs for health-related information over the course of IBD, and with evolving health and life circumstances. Practitioners can be responsive to information needs of people with IBD by having high-quality information available at the right time in a variety of formats and by supporting the incorporation of information in daily life.en_US
dc.identifier.doi10.1097/MIB.0000000000001141
dc.identifier.urihttp://hdl.handle.net/1993/33899
dc.language.isoengen_US
dc.publisherInflammatory Bowel Diseasesen_US
dc.relation.ispartofseriesVolume 23, Issue 8;Pages 1247–1256
dc.rightsopen accessen_US
dc.subjectCrohns Diseaseen_US
dc.subjectColitisen_US
dc.subjectInformative Studyen_US
dc.titleCoping with Inflammatory Bowel Disease: Engaging With Information to Inform Health- Related Decision-Making in Daily Lifeen_US
dc.typeArticleen_US
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