Ensuring Indigenous co-leadership in health research: a Can-SOLVE CKD case example

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dc.contributor.authorWoods, Cathy
dc.contributor.authorSettee, Craig
dc.contributor.authorBeaucage, Mary
dc.contributor.authorRobinson-Settee, Helen
dc.contributor.authorDesjarlais, Arlene
dc.contributor.authorAdams, Evan
dc.contributor.authorTurner, Catherine
dc.contributor.authorKing, Malcolm
dc.contributor.authorPokiak, Letitia
dc.contributor.authorWilson, Mary
dc.contributor.authorVoyageur, Evelyn
dc.contributor.authorLarge, Chantel
dc.contributor.authorMcGavock, Jonathan
dc.contributor.authorKappel, Joanne
dc.contributor.authorChiu, Helen
dc.contributor.authorBeardy, Tamara
dc.contributor.authorFlett, Isabelle
dc.contributor.authorScholey, James
dc.contributor.authorHarris, Heather
dc.contributor.authorJones, Jocelyn
dc.contributor.authorNahanee, Latash M.
dc.contributor.authorNahanee, Delhia
dc.date.accessioned2024-01-04T02:40:24Z
dc.date.available2024-01-04T02:40:24Z
dc.date.issued2023-11-08
dc.date.updated2023-12-01T04:26:50Z
dc.description.abstractBackground Indigenous people are insightful and informed about their own health and wellness, yet their visions, strengths and knowledge are rarely incorporated into health research. This can lead to subpar engagement or irrelevant research practices, which exacerbates the existing health inequities Indigenous people experience compared to the non-Indigenous population. Data consistently underscores the importance of Indigenous self-determination in research as a means to address health inequities. However, there are few formal methods to support this goal within the existing research context, which is dominated by Western perspectives. Main text Canadians Seeking Solutions and Innovations to Overcome Chronic Kidney Disease (Can-SOLVE CKD) is a patient-oriented research network in Canada that recognizes the need to create the space to facilitate Indigenous self-determination in research. Indigenous members of the network therefore created and evolved a unique group, called the Indigenous Peoples' Engagement and Research Council (IPERC). IPERC plays a critical role in informing Can-SOLVE CKD research priorities, as well as creating tools to support Indigenous-specific research and engagement. This approach ensures that Indigenous voices and knowledge are critical threads within the fabric of the network’s operations and research projects. Here, we describe the methods taken to create a council such as IPERC, and provide examples of initiatives by the council that aim to increase Indigenous representation, participation and partnership in research. We share lessons learned on what factors contribute to the success of IPERC, which could be valuable for other organizations interested in creating Indigenous-led research councils. Conclusion Indigenous self-determination in research is critical for addressing health inequities. Here, we present a unique model, led by a council of diverse Indigenous people, which could help reduce health equities and lead to a better era of research for everyone.
dc.identifier.citationInternational Journal for Equity in Health. 2023 Nov 08;22(1):234
dc.identifier.doi10.1186/s12939-023-02044-9
dc.identifier.urihttp://hdl.handle.net/1993/37917
dc.language.isoeng
dc.language.rfc3066en
dc.publisherBMC
dc.rightsopen accessen_US
dc.rights.holderThe Author(s)
dc.subjectIndigenous health
dc.subjectSelf-determination
dc.subjectResearch partnership
dc.subjectHealth equity
dc.subjectKidney disease
dc.titleEnsuring Indigenous co-leadership in health research: a Can-SOLVE CKD case example
dc.typecommentary
local.author.affiliationRady Faculty of Health Sciences::Max Rady College of Medicine::Department of Pediatrics and Child Health
oaire.citation.titleInternational Journal for Equity in Health
oaire.citation.volume22
project.funder.identifierhttps://doi.org/10.13039/501100000024
project.funder.nameCanadian Institutes of Health Research
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