The lived experience of parenting a child with autism in a rural area: making the invisible, visible

dc.contributor.authorHoogsteen, Lindsey
dc.contributor.examiningcommitteeAteah, Christine (Nursing) Levine, Kathryn (Social Work)en
dc.contributor.supervisorWoodgate, Roberta (Nursing)en
dc.date.accessioned2010-12-21T20:59:14Z
dc.date.available2010-12-21T20:59:14Z
dc.date.issued2010-12-21T20:59:14Z
dc.degree.disciplineNursingen_US
dc.degree.levelMaster of Nursing (M.N.)en_US
dc.description.abstractA phenomenological study was conducted to understand the lived experience of parents parenting a child with autism in a rural area. The philosophy of hermeneutic phenomenology was used to guide this inquiry. Interviews of 26 families served as primary data. Thematic statements were isolated using van Manen’s (1990) selective highlighting approach. Making the invisible, visible emerged as the essence of the parents’ experience. Parents shared that although autism is an invisible disability, they in fact made it visible in their constant battles to ensure their child received the best quality of life. Five themes represented this essence: using autism to enable, lifelong advocating, centering autism within the family, the ups and downs of living rurally, and a renewed sense of parenting. Findings from this study may be used to guide program development that is concerned with improving the quality of life families of children with autism.en
dc.description.noteFebruary 2011en
dc.format.extent939875 bytes
dc.format.mimetypeapplication/pdf
dc.identifier.urihttp://hdl.handle.net/1993/4313
dc.language.isoengen_US
dc.rightsopen accessen_US
dc.subjectautismen
dc.subjectpaediatricsen
dc.subjectnursingen
dc.titleThe lived experience of parenting a child with autism in a rural area: making the invisible, visibleen
dc.typemaster thesisen_US
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