Understanding Work Experiences of People with Inflammatory Bowel Disease

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dc.contributor.authorRestall, Gayle
dc.contributor.authorSimms, Alexandria
dc.contributor.authorWalker, John
dc.contributor.authorSexton, Kathryn
dc.contributor.authorRogala, Linda
dc.contributor.authorMiller, Norine
dc.contributor.authorTargownik, Laura
dc.contributor.authorHaviva, Clove
dc.contributor.authorBernstein, Charles
dc.date.accessioned2019-05-13T21:09:24Z
dc.date.available2019-05-13T21:09:24Z
dc.date.issued2016-06
dc.date.submitted2019-05-10T14:19:08Zen
dc.description.abstractBackground People with inflammatory bowel disease (IBD) are at increased risk for unemployment and work absenteeism over the course of their adult lives. However, little is known about the firsthand experiences of people living with the disease regarding perceived barriers, facilitators, and strategies for navigating work roles. Methods In this qualitative study, participants were purposefully recruited from 2 existing IBD cohort study samples. Recruitment strategies aimed for diversity in age, sex, and disease type, duration, and symptom activity. In-depth interviews sought perspectives of living with IBD. Data were analyzed using inductive qualitative methods. Results Forty-five people currently or previously in the workforce participated; 51% were female. The mean age was 45.4 years (SD = 16.1; range = 21–73 years). Mean IBD duration was 10.9 years (SD = 6.3). Participants had a broad range of experiences in adapting to work roles. IBD symptoms and treatments interacted with other personal and environmental factors to shape the experiences of work. Experiences were shaped by: (1) personal health and well-being, (2) personal values, beliefs, and knowledge, (3) job characteristics, (4) workplace physical environment, (5) workplace culture, and (6) financial factors. Participants identified personal strategies and environmental supports that assisted them to navigate their work roles. Conclusions The perspectives of people with IBD provided in-depth understanding of contextual factors that influence work roles. They identified personal strategies to manage health and choices about work, environmental supports that promote timely workplace accommodations, and appropriate social insurance benefits as facilitators of work retention for people with IBD.en_US
dc.identifier.doi10.1097/MIB.0000000000000826
dc.identifier.urihttp://hdl.handle.net/1993/33898
dc.language.isoengen_US
dc.publisherInflammatory Bowel Diseasesen_US
dc.relation.ispartofseriesVolume 22, Issue 7;Pages 1688–1697
dc.rightsopen accessen_US
dc.subjectInflammatory bowel diseaseen_US
dc.subjectChronic Diseaseen_US
dc.subjectWork place Adaptationen_US
dc.titleUnderstanding Work Experiences of People with Inflammatory Bowel Diseaseen_US
dc.typeArticleen_US
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