Experiences and needs of rural families with a child with cancer, the families' perspective
Date
Authors
Journal Title
Journal ISSN
Volume Title
Publisher
Abstract
The diagnosis of pediatric cancer affects the entire family. The treatment and care for children with cancer are usually located within a large tertiary health care facility and often families live a great distance from the treatment centre. The focus of this study was to explore the needs of rural families, experiencing childhood cancer, who live a considerable distance from the centralized pediatric cancer treatment centre. A review of the literature suggested a lack of research examining rural families with a child with cancer. A qualitative research study, using an ethnographic methodology and integrating family systems theory as the conceptual framework was used to explore the needs of these families. Ten family interviews were conducted; in total twenty-five family members participated. The interviews were tape recorded and later transcribed. Purposeful sampling was used to drive the selection of families for this study. Data were collected using a semi-structured interview guide specifically developed for the study. (Abstract shortened by UMI.)