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Who cares for the caregiver? How are the needs of caregivers of primary malignant brain tumour patients met through structured neuro-oncology programs in Canadian Centres?

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dc.contributor.supervisor Ferguson, Evelyn (Social Work) en_US
dc.contributor.author Reuter, Orit
dc.date.accessioned 2011-11-23T17:16:35Z
dc.date.available 2011-11-23T17:16:35Z
dc.date.issued 2011-11-23
dc.identifier.uri http://hdl.handle.net/1993/4983
dc.description.abstract This qualitative multi case research asks how the needs of caregivers of primary malignant brain tumour (PMBT) patients are met through structured neuro-oncology programs in Canadian centres. Utilizing telephone interviews with eleven social workers and one psychologist the study analyses their perspectives on the scope and nature of services to brain tumour patients and their caregivers. PMBT is a rare and palliative disease often with neurocognitive and neurobehavioral effects posing special challenges for caregivers. Health care system reliance on family caregivers has resulted in significant implications for their emotional and physical risk. Findings show exclusive patient focused health care in ambulatory programs with fragmented care resulting in marginalization and invisibility of caregivers. This approach is inconsistent with current literature promoting collaborative family centered care, recommended for continuity of care throughout the illness trajectory. Recommendations focus on systemic caregiver service improvements. en_US
dc.rights info:eu-repo/semantics/openAccess
dc.subject Family caregivers en_US
dc.subject Brain tumour en_US
dc.subject Caregiver needs en_US
dc.subject Canadian neuro-oncology services en_US
dc.title Who cares for the caregiver? How are the needs of caregivers of primary malignant brain tumour patients met through structured neuro-oncology programs in Canadian Centres? en_US
dc.type info:eu-repo/semantics/masterThesis
dc.degree.discipline Social Work en_US
dc.contributor.examiningcommittee Heinonen, Tuula (Social Work) Katz, Anne (Nursing) en_US
dc.degree.level Master of Social Work (M.S.W.) en_US
dc.description.note February 2012 en_US


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