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dc.contributor.supervisorMignone, Javier (Family Social Sciences)en_US
dc.contributor.authorBalcaen, Lisa
dc.date.accessioned2018-01-02T16:23:11Z
dc.date.available2018-01-02T16:23:11Z
dc.date.issued2017
dc.identifier.urihttp://hdl.handle.net/1993/32722
dc.description.abstractFetal Alcohol Spectrum Disorder (FASD) is the leading non-genetic cause of developmental disability in Canada. Many challenges abound at the individual, family and societal levels. Much of the literature cites high quality home and caregiving environments as an important correlate to optimal outcomes for individuals with FASD, however, research is limited on this experience from a family perspective. Eight adoptive parents’ experiences of family well-being, within the context of having a child with FASD in the family, were explored through in-depth semi-structured interviews. Interpretive Phenomenological Analysis (IPA) drew out four superordinate themes each with their collection of sub-ordinate themes describing participants’ experiences of 1) Managing Individuals with FASD; 2) Navigating Family Cohesion; 3) Psychological Warfare; and 4) Experiences of Supports. The Family Adjustment and Adaptation Response Model (FAAR) is used to illustrate how families attribute meanings and adjust to balance demands against capabilities. Findings highlight how this dynamic disability impacts all aspects of family life and has a constant and cumulative effect on families’ well-being. Subjective overall family well-being is less than what participants feel it should be given their capacity. The duality of this experience was evident as families strive to balance their philosophies of family cohesion with the logistics of managing this complex disability. Hope, community, and parents feeling successful in their efforts seem to have strong connections to well-being. The study contributes to a growing body of FASD research and highlights the importance of a family-centered approach to care. Participant-promoted recommendations for research and practice are outlined.en_US
dc.language.isoengen_US
dc.rightsinfo:eu-repo/semantics/openAccess
dc.subjectFetal Alcohol Spectrum Disorderen_US
dc.subjectFASDen_US
dc.subjectFamilyen_US
dc.subjectWell-beingen_US
dc.subjectStressen_US
dc.subjectSupportsen_US
dc.subjectFamily Adjustment and Adaptation Response Modelen_US
dc.subjectFAARen_US
dc.subjectHopeen_US
dc.titleFamilies with Fetal Alcohol Spectrum Disorder: exploring adoptive parents' experiences of family well-beingen_US
dc.typeinfo:eu-repo/semantics/masterThesis
dc.typemaster thesisen_US
dc.degree.disciplineFamily Social Sciencesen_US
dc.contributor.examiningcommitteeRoger, Kerstin (Family Social Sciences) Santos, Rob (Community Health Sciences)en_US
dc.degree.levelMaster of Science (M.Sc.)en_US
dc.description.noteFebruary 2018en_US
local.subject.manitobayesen_US


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