MSpace - DSpace at UofM >
Faculty of Graduate Studies (Electronic Theses and Dissertations) >
FGS - Electronic Theses & Dissertations (Public) >

Please use this identifier to cite or link to this item: http://hdl.handle.net/1993/4313

Title: The lived experience of parenting a child with autism in a rural area: making the invisible, visible
Authors: Hoogsteen, Lindsey
Supervisor: Woodgate, Roberta (Nursing)
Examining Committee: Ateah, Christine (Nursing) Levine, Kathryn (Social Work)
Graduation Date: February 2011
Keywords: autism
paediatrics
nursing
Issue Date: 21-Dec-2010
Abstract: A phenomenological study was conducted to understand the lived experience of parents parenting a child with autism in a rural area. The philosophy of hermeneutic phenomenology was used to guide this inquiry. Interviews of 26 families served as primary data. Thematic statements were isolated using van Manen’s (1990) selective highlighting approach. Making the invisible, visible emerged as the essence of the parents’ experience. Parents shared that although autism is an invisible disability, they in fact made it visible in their constant battles to ensure their child received the best quality of life. Five themes represented this essence: using autism to enable, lifelong advocating, centering autism within the family, the ups and downs of living rurally, and a renewed sense of parenting. Findings from this study may be used to guide program development that is concerned with improving the quality of life families of children with autism.
URI: http://hdl.handle.net/1993/4313
Appears in Collection(s):FGS - Electronic Theses & Dissertations (Public)

Files in This Item:

File Description SizeFormat
Hoogsteen_Lindsey.pdf917.85 kBAdobe PDFView/Open
View Statistics

Items in MSpace are protected by copyright, with all rights reserved, unless otherwise indicated.

 

Valid XHTML 1.0! MSpace Software Copyright © 2002-2010  Duraspace - Feedback