The impacts of care giving on the wellbeing of caregivers of people living with HIV/AIDS
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Date
2015
Authors
Mangal, Dewa
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Abstract
Research has shown that caregivers are confronted with a number of stressors such as burnout, compassion fatigue, and post-traumatic stress disorder as a result of being in direct or close contact with the people suffering from chronic diseases such as HIV/AIDS. However, relevant and professional training, and effective self-care strategies could prevent such stressors. Using the “Individual Interviews with Formal Caregivers” dataset, this study looked at the experiences of seventeen caregivers who provided care to stigmatized and low income people of living with HIV/AIDS. The study sought to understand how the well-being of caregivers was impacted by providing care to stigmatized and low income people living with HIV/AIDS in Manitoba and Saskatchewan. Also, it examined how formal caregivers perceived their relationship with people living with HIV/AIDS at their care.
The findings suggested that caregivers were confronted with and experienced stressors such as burnout, compassion fatigue, and secondary traumatic stress due to having direct and close relationships with people living with HIV/AIDS in their care. Medical caregivers treating HIV/AIDS patients perceived these as formal professional relationships; however, most caregivers working in community support, community outreach, and education sectors understood their caregiving relationships with people living with HIV/AIDS as that of supporter and helper. There was not much research on how caregivers in HIV/AIDS sector perceived their relationships with people living with HIV in their care, so further research is needed to explore the nature of the relationship between the caregiver and care recipients. Finally, this study enriched the existing research on this topic by providing an insight on how caregivers in HIV sector perceive their relationships with individuals living with HIV/ AIDS in their care.
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Keywords
Caregivers well-being, low income people, HIV/AIDS