MSpace - DSpace at UofM >
Research Publications from University of Manitoba Researchers >
Research Publications >

Please use this identifier to cite or link to this item: http://hdl.handle.net/1993/12441

Title: Is dignity therapy feasible to enhance the end of life experience for people with motor neurone disease and their family carers?
Authors: Bentley, Brenda
Aoun, Samar M
O’Connor, Moira
Breen, Lauren J
Chochinov, Harvey M
Issue Date: 20-Sep-2012
Citation: BMC Palliative Care. 2012 Sep 20;11(1):18
Abstract: Abstract Background Development of interventions that address psychosocial and existential distress in people with motor neurone disease (MND) or that alleviate caregiver burden in MND family carers have often been suggested in the research literature. Dignity therapy, which was developed to reduce psychosocial and existential distress at the end of life, has been shown to benefit people dying of cancer and their families. These results may not be transferable to people with MND. The objectives of this study are to assess the feasibility, acceptability and potential effectiveness of dignity therapy to enhance the end of life experience for people with motor neurone disease and their family carers. Methods/design This is a cross-sectional study utilizing a single treatment group and a pre/post test design. The study population will comprise fifty people diagnosed with MND and their nominated family carers. Primarily quantitative outcomes will be gathered through measures assessed at baseline and at approximately one week after the intervention. Outcomes for participants include hopefulness, spirituality and dignity. Outcomes for family carers include perceived caregiver burden, hopefulness and anxiety/depression. Feedback and satisfaction with the intervention will be gathered through a questionnaire. Discussion This detailed research will explore if dignity therapy has the potential to enhance the end of life experience for people with MND and their family carers, and fill a gap for professionals who are called on to address the spiritual, existential and psychosocial needs of their MND patients and families. Trial registration ACTRN Trial Number: ACTRN12611000410954
URI: http://hdl.handle.net/1993/12441
DOI: http://dx.doi.org/10.1186/1472-684X-11-18
Type: Journal Article
Appears in Collection(s):Research Publications

Files in This Item:

File Description SizeFormat
1472-684X-11-18.xml50.96 kBXMLView/Open
1472-684X-11-18.pdf255.22 kBAdobe PDFView/Open
View Statistics

Items in MSpace are protected by copyright, with all rights reserved, unless otherwise indicated.

 

Valid XHTML 1.0! MSpace Software Copyright © 2002-2010  Duraspace - Feedback